If You Have CFS/Fibromyalgia – This Book is For YOU

I literally stumbled on this book while browsing on Amazon, and of course, in light of the research I posted about recently HERE and HERE I was really interested.wpid-20150729_162418.jpg

I read all the Amazon reviews, which convinced me it was worth a read, and then I went and looked on ebay and found it a whole ยฃ4 cheaper ๐Ÿ™‚ย  But anyway – wherever you can locate it, you really, REALLY need to buy it and read it two or three times.

I say 2 or 3 times because some parts of it are quite……scientific…..and with the old familiar brain fog, chances are it won’t all go in at once.

I have known of Dr Myhill for several years, since I first got Fibro, and although there was some controversy about her, it was more a case of the NHS being ridiculous, trust me on this. Dr Myhill now has a private practice that people all over the country would love to be able to attend, because she makes a LOT of sense.

The book explains the mitochondria failure, and uses the analogy of the human body as a car, which helps to make the info easier to relate to.

I found it very interesting that she has actually published scientific research and evidence of the mitochondrial basis of CFS (and fibromyalgia as the two are so very closely linked as to be almost indistinguishable at times) a whole 5 years before the Spanish team I posted about on the links above.

She has treated 5000 CFS patients, and she describes the tried and tested protocol for recovery in this book.

For those of you who who have started taking Co-enzyme Q10 after reading the mitochondrial research – WE ARE ON THE RIGHT TRACK!!!ย  But there is SO much more to it than just Co-Q10, and that’s why you need to buy this book and read it.

Dr Myhill states that there is basically no point to treating CFS until the basics are in place – tightly. The most basic of all being sleep, as our bodies recover and most importantly, they repair during sleep. But sleeping in fits and starts like I have been for most of the last 18 months, just does not cut it. This particular snippet of info harkens right back to the info my mum was given when she was first diagnosed with FM 26 years ago. That fibro sufferers do not reach the deepest levels of sleep which enable our muscles to repair, hence the relentless pain and fatigue.

I am seriously considering buying a copy of this book for my GP, in view of the battles I have had getting the right dose of zopiclone to help me sleep, and more than a weeks supply maybe twice a year.

Dr Myhill describes how combinations of herbal sleeping aids should be experimented with to find the right combination for each individual. She will also prescribe zopiclone on top of the herbal remedies because CFS sufferers need that much help to sleep properly.ย 

When she was describing the classic sleep pattern of her patients – she was describing me!!

So, 2 nights ago, I took 2 herbal Nytol tablets (which are the lowest dose of the 3 types of pills I have) and then 20-30 mins later I took a normal Nytol tablet.

Within half an hour I was asleep!!!

Seriously. I was asleep before 1 am. And what is more remarkable – I slept for 8 hours. Yep – 8 whole, entire hours!!! I was stiff and sore coz I hadn’t moved all night LOL but I felt so much more……human…..normal…….better for it.

Last night I was a bit naughty. I was using my phone and so didn’t take my pills as early, and so I didn’t get to sleep as fast, but I slept 7 hours solid. For me, this is a bloody miracle!!

I am going to continue, and from now on take the advice she gives on what is essentially what they call ‘sleep hygiene’ (what a bloody awful name for it tho….urgh!!) but a bit more strict, and for me, it means breaking what I hadn’t realised has become a habit until I thought about it – using my phone before I try to sleep, and when I can’t get to sleep. That has to stop completely.

I have done things like have a light filter on my lappy and on my phone, and instead of using the lamp with my daylight bulb beside my bed, I am using my normal yellow toned bulb more. It’s much dimmer and means I can’t do any crafts – but that’s kinda the point. And the light filters on my electronic stuff is simply not enough.

The hardest part is going to be transitioning diet wise due to my multiple food allergies, but one step at a time.

I have definitely felt a benefit from the Co-Q10. Powdered D-ribose needs to replace the sugar I put in my drinks because the ‘wafer’ form of it I bought are just enormous!! And putting it into my coffee and tea (all 2 cups a day lol) will reduce my refined sugar intake a bit.

She says that CFS is a symptom, not an illness in itself, and the mitochondrial evidence explains SO much, as well as how hard it is to treat with what the doctors have been using to date.

I am not expecting miraculous results, indeed Dr Myhill talks in terms ofย  even years depending on how long you have had CFS and how bad it is to begin with. But when faced with an entire lifetime of CFS/FM………………I know what I would rather have. But it seems that most people have one thing that makes all the difference – it just varies from person to person, as you would expect.

She also stresses that relapses occur, and we’ll never be the people we were before we got ill, but dammit – don’t we all want an improvement in our daily struggles and misery?

I do!! Which is why I am going to begin this. It basically provides a much clearer strategy of what I have already been doing. It gives me a reference to go back to, knowing it has helped a lot of people already. I owe it to myself and to my family who have taken as much of the slack as they can. But the girls won’t be with me forever, and I am not going to keep them here with me because they feel they need to care for me. Even if I only get back to where I was 2 years ago, I will be happy.

I haven’t looked yet to see how much the lab tests are, simply because I am afraid to. However, I bet a way can be found – there is always a way. And I would prefer it if my GP was on board, so I need to go and discuss it with her.

This last 18 months has been my worst, without a shadow of a doubt. And I am sick to the back teeth of being glued to my bed most of the time. I want my life back. I want to be able to go to the shops for a couple of hours without it knocking me on my back for the next 3 – 4 days. There is even an explanation in the book of why this happens, and it is all within those tiny structures within our cells. I want to be able to sit and do stuff without paying for it in pain for the rest of the week. To be able to do more than have a shower in a day. I’d even relish housework – let me at the hoover godammit!!! LOL

If anybody does buy this and wants to give it a try as well, please let me know. We could look into starting a new blog with shared access to report our experiences and progress etc.

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33 Responses to If You Have CFS/Fibromyalgia – This Book is For YOU

  1. Buying this right now!!

    Liked by 2 people

    • Moongazer says:

      Excellent!! Let me know when you’ve read it ๐Ÿ™‚

      Liked by 1 person

      • I got the kindle version and am already at chapter three and I’m actually in tears. I’ve been diagnosed for 10 years yet I feel like I’ve just finally found out what’s wrong with me.

        Liked by 1 person

        • Moongazer says:

          ((((hugs))) oh blimey, I’ve got tears in my eyes too now lol
          It just makes perfect sense, doesn’t it? Like walking into a room with the curtains and windows suddenly thrown open to let in light and air.
          When you are ready, if you decide to try the protocol, send me an email – there is a link on the right hand side of my blog. It should work. I only just put it up, and I don’t think anyone has tried it yet. let me know here if you send one so I can keep an eye out.
          I think it will be really good for those of us who try the protocol to shar our experiences xx

          Like

          • Yeah. My current thinking is that I will do anything she suggests and I might have a phone consultation with her (I checked the website). But I’m going to read the book a couple of times first and I’ve got a holiday coming up so it might be hard to implement just as I’m going away but anything is worth a try and she seems to really know what she’s talking about. So I will let you know as I get more through the book and when I start the protocol x

            Liked by 1 person

          • Moongazer says:

            Excellent ๐Ÿ™‚

            Like

    • playswithwords says:

      Me, too ๐Ÿ˜€

      Liked by 1 person

  2. lydiaa1614 says:

    I am going straight to Amazon.ca to see if they have it, and then to Ebay if needed! Thanks for all the research you do! ๐Ÿ™‚

    Liked by 1 person

  3. magickmogwai says:

    Sounds like this book has helped you a lot. My bf has CFS so I will recommend the book to him and read it myself too. Anything that can help is worth a try

    Liked by 1 person

    • Moongazer says:

      Well, 3 nights of 7+ hours sleep is only the beginning, there are dietary changes to make and a variety of supplements to take. But if spending out each month means recovery, then it’s an investment. I’ve become quite skilled over the years at hunting down things to keep costs down, so if I have to make cut backs in other ways, then that’s what I’ll do.
      But definitely get the book and read it. Let me know what you both think. As I say, I think it would be good if there are a few of us giving the protocol a try, fo us to have an online meeting place to support each other and share our experiences xx

      Liked by 1 person

  4. Trisha says:

    I just bought the ebook version from Amazon! Thank you for telling us about it. I’ve read about mitochondrial dysfunction as related to CFS and fibromyalgia but I’ve never taken the step of buying d-ribose. Maybe it’s time I give it a try. I look forward to seeing how you progress with the protocol!

    Liked by 1 person

    • Moongazer says:

      I am so glad you got a copy of it. I read on the Amazon reviews that some of the graphics don’t translate very well, if you find that’s the case, let me know and I can email you photographs of them, if that will help ๐Ÿ™‚
      My next step is to compare the supplements that Dr Myhill uses to what I already take. I saw a supplement mix that an American Dr recommends for CFS, but it’s ยฃ35 a month *sigh*. Having said that tho, it might well prove cheaper and/or more comprehensive (or better) than what I currently use. I will of course, post about what I discover ๐Ÿ˜€

      Like

      • Trisha says:

        Was Dr, Teitelbaum the American doctor? I have tried his vitamin powder but only used for a couple of months. It is really expensive, although like you say it might end up being cheaper than taking everything separately.

        I was so disappointed to see that Dr. Myhill recommends the paleo diet. It’s supposed to be so good for auto immune diseases but I have such a hard time with how meat-centric all the food is. That part is going to be really challenging for me.

        I look forward to hearing your thoughts and experiences with the protocol!

        Liked by 1 person

        • Moongazer says:

          Yes!! That is the Dr ๐Ÿ™‚ Did you feel any benefit for the time you were taking it?
          My task for tmrw is to see how Dr Myhill’s mix compares to his and how both compare to the separate items I have now.
          I am going to have problems with the paleo too as I am allergic to fish, nuts and seeds which comprise almost as big a part as meat. But I think her main point is regarding the types of fuel our cells need – ie fats rather than the carbohydrates. I know I am going to struggle with no chocolate altho she does allow the 80% cocoa type.
          Night 4 and the mix of sleep aids hasnt worked. It is 3.39 am here. BUT I had to attend to something I could not avoid after I had taken them and I felt the ‘sleep wave’ but had to shake it off ๐Ÿ˜ฆ

          Like

          • Trisha says:

            I don’t think I noticed much of a difference while taking the Revitalization whatever-it’s-called vitamin powder. But, I only took it for a couple of months so maybe I needed to be on it longer to see a difference. I also didn’t take the D-ribose along with it.

            I’m sorry your sleep aids haven’t worked. I hate it when the sleep wave hits and I miss it because of having to do something. That happened to me last Saturday. My sleepy herbs kicked in and then I had to wrangle all the cats, who were not cooperating. Then I didn’t sleep well the entire night!

            I’m really liking the book so far. I like the way she explains everything. Even though I was diagnosed with fibro, when I read books about CFS I feel like they describe what I go through more accurately than descriptions of fibro. I look forward to reading what Dr. Myhill has to say about fibro…and so many other things. I’m so tempted by all the links to specific subjects but I’m trying to read straight through.

            I will struggle with the no chocolate thing too, although I like the dark high-cocoa content best anyway.

            Liked by 1 person

  5. plus+beauty27 says:

    I should def order this sometime soon! ๐Ÿ™‚ xo

    Liked by 1 person

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  7. Just finished the book for the second time and thought you might want to know that the glossary should be read. It talks about probiotics which I don’t think are mentioned elsewhere in the book. I think that was the only thing I got from the glossary though.

    Liked by 1 person

    • Moongazer says:

      I was reading parts of it again last night, and it really is a book that needs at least 2 reads I think.
      I saw about the probiotics, but I am all spent out for now. Although I am taking 2g of vitamin C at night, so that’s a start ๐Ÿ™‚

      Liked by 1 person

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  9. blue sky says:

    I am fascinated by this! I have lupus and fibro. Last september I put myself on an elimination version of the paleo diet which basically consists of meat, fish, veg, a small amount of fruit and NOTHING else. The improvements were quite remarkable and I have since reintroduced nuts and eggs which has made life easier. Is this similar to the regime recommended in the book? The theory of the Autoimmune Protocol Diet is that if you heal the gut the rest of the system will follow. Thus far I would agree and indeed my lupus blood results have shown substantial improvement. However, I cant help but feel that my fibro kicking around is still menacing me. And fibro is a much more slippery customer as it cant be quantified in blood results. My sleep is still not great and I suffer a significant amount of pain. I have been thinking for a while that I am still missing a vital piece in the jigsaw….maybe this is it?!!

    Liked by 1 person

    • Moongazer says:

      Hiya!!
      It sounds like you might have the paleo part of the protocol already sorted ๐Ÿ˜€ And it’s good to hear that you felt an improvement with it.
      The paleo diet’s basic premise, I believe, is no grains or dairy. So that leaves meat, fish, nuts and seeds and non-root vegetables (or minimal non-root veg). It’s the diet humans evolved to eat before we discovered farming.
      It fits in totally with the mitochondrial failure, as our bodies evolved to use fat as the main energy source, not sugars, and especially not refined sugars and carbohydrates that make up so much of what is *supposed* to be healthy.
      It could well be that the nutrients we’ve all been talking about – L-carnitine, d-ribose and Co-enzyme Q10 are the missing piece of your jigsaw ๐Ÿ™‚
      Sleep is just an ordeal for me these days, although I did get a full 7 hours last night again, thanks to my dr prescribing me zopiclone, which I took alongside Nytol and herbal nytol.
      ((((hugs)))) for your pain. I fully understand. Fibro pain is just….relentless, and so unpredictable at times, and very hard to relieve.
      If you are in the UK, nefopam hydrochloride taken in combination with paracetamol does help if you take it regularly (I definitely know about it if I miss a dose) but it’s not available in the US. But I recently saw that turmeric is helpful for pain, but you need the type that includes bioperine to aid absorption. I haven’t tried it personally, but I had a fair few comments from people who have and found it beneficial.
      If |I were you, I would buy the book and have a read, see if it makes sense to you ๐Ÿ™‚

      Like

      • blue sky says:

        Thankyou! I am in the UK, with a particularly unhelpful doctor….if it’s not in your bloods then we cant treat it kind of thing (and no we won’t pay for more expensive tests!). I am going to get the book for a better read – thankyou for giving this some publicity!

        Liked by 1 person

        • Moongazer says:

          Is there a different dr in the practice you could ask to see? Or ask for a referral to a rheumatologist at your local hospital?
          I find it *so* annoying that these drs are able to “practice” medicine when they have that attitude grrrr!!!

          Liked by 1 person

  10. blue sky says:

    Btw, I looked at Dr Myhills website and I see she will do these extra tests privately for you but she seems to be limiting new patients at the moment?

    Liked by 1 person

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  12. Next money is available, I will get the kindle edition. Sounds interesting.

    Liked by 1 person

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